Memory Care Resources
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Find the Best Information on memory loss and memory care from these reputable information providers:
Alzheimer’s Disease Education and Referral (ADEAR) Center
P.O. Box 8250
Silver Spring, MD 20907-8250
800-438-4380 (toll-free)
A service of the National Institute on Aging, the ADEAR Center offers information and publications for families, caregivers, and professionals on diagnosis, treatment, patient care, caregiver needs, long-term care, education and training, and research related to AD. Staff members answer telephone, email, and written requests and make referrals to local and national resources. The ADEAR website offers free publications in English and Spanish, email alert and online Connections newsletter subscriptions, the AD clinical trials database, the AD Library database, and more. Additional helpful resources include:
- Legal and Financial Issues: A List of Resources at www.nia.nih.gov/Alzheimers/Publications/legal.htm
- AD Lib (searchable online database) at www.nia.nih.gov/Alzheimers/Resources/SearchHealthLiterature
Eldercare Locator
800-677-1116 (toll-free)
Families often need information about community resources, such as home care, adult day care, and nursing homes. Contact the Eldercare Locator to find these resources in your area. The Eldercare Locator is a service of the Administration on Aging.
National Institute on Aging Information Center
P.O. Box 8057
Gaithersburg, MD 20898-8057
800-222-2225 (toll-free)
800-222-4225 (TTY/toll-free)
www.nia.nih.gov/HealthInformation
This service of the NIA offers many helpful publications, including:
- Age Page: Getting Your Affairs in Order
- End of Life: Helping with Comfort and Care
- So Far Away: Twenty Questions for Long-Distance Caregivers
National Library of Medicine
MedlinePlus
Search for:
“Advance Directives”
“End-of-Life Issues”
- the MedlinePlus homepage (http://medlineplus.gov/)
- MedlinePlus en español (http://medlineplus.gov/spanish/)
NIHSeniorHealth
Visit this senior-friendly website from the National Institute on Aging and the National Library of Medicine offering health information for older adults. Special features make it simple to use. For example, you can click on a button to have the text read out loud or to make the type larger.
Our Favorite Organizations
AARP
601 E Street, NW
Washington, DC 20049
888-OUR-AARP (888-687-2277; toll-free)
www.aarp.org/families/legal_issues
Aging with Dignity
P.O. Box 1661
Tallahassee, FL 32302-1661
888-5WISHES (888-594-7437; toll-free)
Alzheimer’s Association
225 N. Michigan Avenue, Suite 1700
Chicago, IL 60601-7633
800-272-3900 (toll-free)
866-403-3073 (TDD/toll-free)
American Bar Association
Commission on Law and Aging
740 15th Street, NW
Washington, DC 20005-1022
202-662-8690
Family Caregiver Alliance
180 Montgomery Street , Suite 1100
San Francisco, CA 94104
800-445-8106 (toll-free)
National Academy of Elder Law Attorneys
1604 North Country Club Road
Tucson, AZ 85716
520-881-4005
National Association of Professional Geriatric Care Managers
1604 North Country Club Road
Tucson, AZ 85716
520-881-8008
National Hospice and Palliative Care Organization
NHPCO Marketplace
1700 Diagonal Rd., Suite 625
Alexandria, VA 22314
800-658-8898 (toll-free)
877-658-8896 (Spanish/toll-free)
www.caringinfo.org/AdvanceDirectives
| Alzheimer’s Disease Education and Referral Center (ADEAR)
P.O. Box 8250 Silver Spring, MD 20907-8250 http://www.alzheimers.nia.nih.gov Tel: 301-495-3311 800-438-4380 Fax: 301-495-3334 |
National Institute of Mental Health (NIMH)
National Institutes of Health, DHHS 6001 Executive Blvd. Rm. 8184, MSC 9663 Bethesda, MD 20892-9663 Tel: 301-443-4513/866-615-NIMH (-6464) 301-443-8431 (TTY) Fax: 301-443-4279 |
| Alzheimer’s Association
225 North Michigan Avenue 17th Floor Chicago, IL 60601-7633 Tel: 312-335-8700 TDD: 312-335-5886 Fax: 866.699.1246 |
Alzheimer’s Foundation of America
322 Eighth Avenue 7th Floor New York, NY 10001 Tel: 866-AFA-8484 (232-8484) Fax: 646-638-1546 |
| National Organization for Rare Disorders (NORD)
P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968 Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 |
Family Caregiver Alliance/ National Center on Caregiving
180 Montgomery Street Suite 1100 San Francisco, CA 94104 Tel: 415-434-3388 800-445-8106 Fax: 415-434-3508 |
| Association for Frontotemporal Dementias (AFTD)
1616 Walnut Street Suite 1100 Philadelphia, PA 19103 Tel: 267-514-7221 866-507-7222 |
C-Mac Informational Services/Caregiver News [For Alzheimer's-Type Dementia Caregivers]
120 Clinton Lane Cookeville, TN 38501-8946 |
| National Family Caregivers Association
10400 Connecticut Avenue Suite 500 Kensington, MD 20895-3944 http://www.thefamilycaregiver.org Tel: 301-942-6430 800-896-3650 Fax: 301-942-2302 |
Well Spouse Association
63 West Main Street Suite H Freehold, NJ 07728 Tel: 800-838-0879 732-577-8899 Fax: 732-577-8644 |
| National Respite Network and Resource Center
800 Eastowne Drive Suite 105 Chapel Hill, NC 27514 Tel: 919-490-5577 x222 Fax: 919-490-4905 |
American Health Assistance Foundation
22512 Gateway Center Drive Clarksburg, MD 20871 Tel: 301-948-3244 800-437-AHAF (2423) Fax: 301-258-9454 |
| National Hospice and Palliative Care Organization /Natl. Hospice Foundation
1700 Diagonal Road Suite 625 Alexandria, VA 22314 Tel: 703-837-1500 Helpline: 800-658-8898 Fax: 703-837-1233 |
Alzheimer’s Drug Discovery Foundation (formerly, Institute for the Study of Aging)
1414 Avenue of the Americas Suite 1502 New York, NY 10019 Tel: 212-935-2402 Fax: 212-935-2408 |
| John Douglas French Alzheimer’s Foundation
11620 Wilshire Blvd. Suite 270 Los Angeles, CA 90025 Tel: 310-445-4650 800-477-2243 Fax: 310-479-0516 |
Lewy Body Dementia Association
P.O. Box 451429 Atlanta, GA 31145-9429 http://www.lewybodydementia.org Tel: 404-935-6444 800-LEWYSOS (539-9767) Fax: 480-422-5434 |
